How did that happen?

First off I have to say WOW!! We feel the love!  In less than 24 hours we had over 450 views in 5 different countries.  This is amazing!!  So thank you.  Although we are new to blogging, so that could be a low number in the blogging world, so if that's the case, we need to annoy people more:).  Keep on spreading the word!

Tim and I get asked questions quite often about PKS.  Which we have to say that we actually enjoy answering.  We are not at all offended when people come up and ask questions, which is what most of our PKS families would say.  We would much rather have you come up and ask, then to just sit and stare.  We love to tell people about it!!  So ask away:)

One of the things we get asked a lot is how PKS happens.  Well this is another teachable moment (which I will take advantage of because I do miss it:)).  You will get the 6th grade version.  PKS (based on the information today), is a random event that happens during cell formation.  Basically we tell people that when the cells were all dividing, for some reason chromosome 12 decided to pick up 2 extra parts.  And since we have these cells and chromosomes throughout our bodies, some of the cells have the extra parts and some don't.  This is called mosaicism.  So each person with PKS can have a different amount of these cells in their body.  These cells with the extra chromosome is what disrupts the development.  Hopefully I didn't confuse you too much.  One thing Tim and I have in common, is that we tend to be nerds and find this sort of thing interesting.  Genetics is complicated.  We had genetic counseling after he was diagnosed, but we also find it interesting just to learn about genetics.

Now the one thing we were also asked is whether we would have more kids after Patrick and the answer has always been yes (when the timing was right)!!!  PKS is not inherited.  Which means they do not believe it is passed through families.  It is genetic and random.  Yes...genetic is different than inherited.  Too tired to get into that too much tonight.  But hey...you learned something new:) we were told that having a child with PKS was rare, but to have 2 was even more rare, because based on what our geneticist told us, there are no cases of families with 2 PKS children.

Now...back to having more kids...yes...we wanted more and if it was up to Tim we would have 20.  But he doesn't have a uterus so let's face it, it's not up to him.  Just kidding.  We both wanted a lot of kids, but having a child with a disability can change things a little.  Not in a bad way, just in the way that it's suppose to be.  So we decided we would wait a while to have more.........we all know how well that turned out.  Little Jameson had other plans, which we are incredibly grateful for!!!  I will post about Jameson and Avery separately.  So they can have their own spotlight.  So stay tuned....

In case you're wondering what I do all day....

Laundry baskets that never empty, my little Jameson doing what he does best and Bubby doing his own thing:)

Also stay tuned for the one and only Timothy Kelley, who will be writing his own blog this week.  Woo hoo...can't wait:)