Wednesday, November 27, 2013

Thankful...for sleep tonight:)

Forgive me for any errors, Tim and I are working on 2 hours sleep because my sweet boy decided he wanted to hang out in the ER all night:(. Last night he spiked a fever of almost 104 and was shaking, vomitting and lethargic, so we thought we better take him in.  Of course as soon as we get to the ER and walk down the hallway, Patrick perks his little head off Tim's shoulder and starts his, "ta-ta-ta" noise that he does when he is happy...of course:). Little stinker!!  But he rarely gets sick and I have never seen him this bad.  I don't like to mess around with him, so off to U of M we went!  They ruled out all the big stuff (ears, pnemonia, UTI) and chalked it up to a virus.  Patrick almost enjoyed it there a little too much...hoping he doesn't make it a habit;). He slept a lot today and we finally got some applesauce down tonight, and he seems better, still a little warm.  Hoping we can rest up tomorrow and see family Friday.  We shall see...
I make this look good!

I wanted to show off his new toy!!  So excited!!!  This is his gait trainer, that will help him learn to take steps!  He loves it so far!


Next I want to say how thankful we are for a few things.  First of all, his fundraiser was a huge success!!  We sold a ton!  Way more than expected!!!  So thank you!!!!!  I would love for everyone to email or text me a pic wearing the shirt when you get them....I have a plan:).

The one thing I would like to share this year, that I am truly thankful for, is the care that Patrick is getting here, both medically and in school.  The ER was so efficient with him.  But the most meaningful thing that they did, was they talked to him like they would any other kid.  You would be surprised at how some doctors are kind of timid or nurses who aren't sure what to make of him.  He isn't anything to be scared of just because he can't use words to communicate.  He still deserves to be talked to just like any other kid.  We have had doctors who wouldn't talk to him or almost didn't know how to handle him.  The nurses and doctors last night talked to him and were just so sweet to him in general.  Very compassionate and kind.  That is a big deal to us!  So thank you U of M!
Next are his teacher and therapists at school, whom we are so thankful for this year!   They truly love him.  The one thing I love most about them, is they do the same things with Patrick, that they would any other child.  His activities are so cute and funny.  My favorite part of the day is seeing what he brought home! We know that he doesn't do a lot of it(he will someday).  But they sit him down and go through the process with him, which makes me smile:). It means so much to see him just being treated like anyone else.  He is learning so much from it.  Sure there are things he won't be able to do, but they find a way to adapt, without him just sitting in the corner doing nothing.
Love this...all the things he is thankful for!
His little hands as leaves.  Cuteness..

So I guess I am thankful for the people around us, that just love Patrick the way he is. I don't have to explain why he is the way he is.  They care for him and treat him like anyone else.  Sometimes it can be frustrating walking through a store or the mall and people stare at him(I mean who wouldn't?  He is awesome).  So when you find people who don't think twice about coming up and talking to him or hugging him and don't care that he may not talk back or hug in return, you are thankful.  

Happy Thanksgiving to all!

No comments:

Post a Comment